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This post is written by Senior Fellow Nancy Cabelus, DNP, MSN, RN, an international forensic nurse consultant currently working with Physicians for Human Rights on a program addressing sexual violence in conflict zones in central and east Africa.

Nurse with Shaken baby simulation doll. Patient waiting bay area quickly converted into a makeshift classroom.

Nurse with Shaken baby simulation doll. Patient waiting bay area quickly converted into a makeshift classroom.

In recent days, I have been traveling as a consultant with a medical team sponsored by the Rotary Club of Davis, California to provide training on abusive head trauma and Shaken Baby Syndrome to medical professionals in Kenya.  Shaken Baby Syndrome (SBS) is a medical condition and form of child abuse caused by violent shaking of an infant. To date, our team has given 9 presentations to hundreds of Kenyan medical providers and students. When participants were asked if they had ever heard of SBS, only a few hands would go up. Most had never heard of SBS. However, the majority had seen the classic symptoms of SBS in their practice. Classic symptoms of SBS include subdural hematoma, retinal hemorrhages, brain swelling, rib fractures and other patterned injures and fractures. Long-term consequences of SBS include cerebral palsy, learning disabilities, and developmental delays. By the end of the presentations and demonstrations using simulation baby dolls, most nurses and doctors agreed that they had seen such cases of trauma in their practice and/or had shaken a baby to quiet them. Some reported that they believed that shaking a baby was the right thing to do when a child was crying inconsolably.

A 2010 national survey sponsored by UNICEF on violence against children in Kenya revealed that 66% of girls and 73% of boys reported experiencing some type of physical abuse by age 18. This limited survey data does not mention SBS specifically nor identify SBS as form of child abuse. The possibility of an adult remembering if they were shaken as a young child is highly unlikely. There is no other data available on SBS in Kenya.

In Yolo County, California where our project team members work, an SBS prevention program was implemented to educate new parents about SBS. With this intervention, the mortality rate of infant deaths declined from 12 per year to 0 or 1 for the following 3 years. When program funding stopped, the numbers of deaths began to rise.  This convincing evidence led to reinstatement of the program.

Thank you to our team leader– Rotarian Judy Wolf for her hard work and vision to make this project a reality in Kenya; to Dr. Angela Rosas and Ms. Kalyca Seabrook for their professional expertise and donated time; to Rotarian Kay Resler for her perpetual smile and administrative support; and special appreciation to Rotarian Vickie Winkler, founder and executive director of Africa HEART for her generosity, kindness, and love for this team and the people of Kenya. It is my pleasure and a privilege to be among you.

  written by Nancy Cabelus, DNP, MSN, RN

 

This post is written by Senior Fellow

This guest post is written by Carolyn Crist a freelance writer pursuing her master’s degree in Health and Medical Journalism at the University of Georgia.  She graduated from UGA in 2010 with degrees in newspapers and English and worked as an education and political reporter.

Carolyn Crist

Primary care doctors are in short supply in the United States, and the trend will worsen unless problems with access, pay, and training are addressed.

The challenge of making primary care available for all is complex, but using technology, reworking the medical school curriculum, and employing a team-based approach to patient care could be the answer.

The conversation certainly isn’t new, and it continues to happen nationally as physician groups are testing ideas. The best solutions so far are encouraging health professionals to work to the top of their licenses, said a panel of experts discussing the “team-based” approach to primary care at the Association of Healthcare Journalists conference held in Boston.

“You have dissatisfied patients who can’t navigate the health care system, providers who are frustrated with the way they practice, and a health care system that is ready to implode,” said Jane Maffie-Lee, a nurse practitioner and program director of Massachusetts General Hospital’s Ambulatory Practice of the Future. “In some primary care settings, service is terrible and people don’t smile. Something has to happen.”

The current reimbursement system for primary care forces doctors to cram more patients into their workday to battle relatively low pay rates, she noted. At the same time, quality seems to be falling as overall costs increase, which deters patients from primary care offices and instead takes them straight to specialists’ doors.

About five years ago, Mass General created the ambulatory service that Maffie-Lee directs as a way to engage people in their own care through electronic medical records, teams, and new technology. Care is provided by teams of doctors and nurses who share responsibilities, enabling nurses to do more than in traditional doctor-centered practices. The system is working well so far, Maffie-Lee said.

“Patients have easy access to their records and can participate, and the providers focus their practice on health and wellness, asking patients about exercise, diet, and well-being each visit,” she said. “It’s important to have this culture of collaboration and engage the patients in their weight concerns rather than telling them to just lose 40 pounds, for example.”

In Rhode Island, Coastal Medical Inc. is trying a similar team-based approach to medicine. With 19 offices, 100 providers, and 100,000 patients, the group is driven by data and the desire to give patients access to care, said Alan Kurose, president and chief executive officer.

“All of this is underway and helping, but we have a long way to go,” he said.

Nurses, case managers, pharmacists, and medical assistants are all on the same team. The teams cover weekends and holidays, and urgent care clinics stay open outside normal business hours.

Though Coastal’s approach hasn’t been extensively studied yet, team-based care is showing positive results, Kurose said. In a separate panel on health care costs and quality, Donald Berwick, former head of the Centers for Medicare and Medicaid Services, said the best examples are emerging from community efforts rather than policymakers. He cited a health care project in Alaska, where team-based care has lowered hospital inpatient stays by 50 percent, reduced emergency department admissions by 53 percent and cut specialty visits by 63 percent.

As promising as team-based care appears, policy changes are also essential. Health professionals and politicians must address the health care system as a whole — a daunting task, said Andrew Ellner, co-director of the Harvard Center for Primary Care and a practicing internist at Brigham and Women’s Hospital.

“The basic problem is that our system is built around doctors versus built around people, and that’s not just patients but nurses and medical assistants as well,” he said. “We need a culture transformation and a hardware redesign.”

Ellner proposed that health care be rethought by focusing on people, technology, and space. Collaborating in teams to deliver care is a start, but health providers also need to use technology to its fullest extent. Smartphone applications and mobile devices can link providers and patients more closely, enabling patients to better manage their own health.

“We’ve only begun to scratch the surface in how this can be implemented effectively,” he said, and a redesign of the traditional payment system is also imperative. Use of interactive technology will  spread only if providers can be compensated for work outside traditional office and clinic settings.

With a team effort to manage the work load, doctors can help more patients than ever before, he said. Only then can physicians return to the true “art of medicine” by analyzing data from their patients and studying populations in their community as a whole.

“Imagine physicians being able to use technology to pick up the signal from the noise,” Ellner said. “Imagine them not waiting until patients come to them — at the most costly and sick time of care — and instead take action.”

While changes in day-to-day practice are certainly helpful, ultimately, medical school curriculum and culture must also change, said Andrew Morris-Singer, a primary care doctor and founder of Primary Care Progress, an organization that spreads information about primary care and trains doctors and other professionals to advocate for changes in health care.

“There’s an established culture of promoting specialties in medical school, and then there’s concern about higher pay, medical school debt, and the work-life balance,” Morris-Singer said. “The other half of the story is the actual training and courses because we’re not teaching students to recognize and treat the problems faced by the majority of patients.”

Doctors in training are taught to address the rarest and sickest of patients who are admitted to elite teaching hospitals, yet they may not be able to diagnose a common skin rash, he added.

“We’ve got to fix this, and we’ve go to fix it soon,” Morris-Singer said.

                                                                                                                     This guest post is written by Carolyn Crist.

This guest post is written by Carolyn Crist

Do you have a designated health care proxy or agent and an advance directive that indicates your preferences for health care if you are unable to make decisions for yourself?

April is Health Care Decision Month—a time to all of us to reflect on some of the decisions that we or our loved ones might confront around how we die. In keeping with this theme, Healthstyles is focusing its programs this month on how to have the conversations about how we want to die and how to take the legal steps in ensuring that others respect our wishes.

The first program aired on April 4th on WBAI, 99.5 FM (www.wbai.org) and focused on why it’s important to complete an “advance directive” that designates who will make health care decisions for you it you become unable to do so.

The second program aired on April 11th and focused on how to actually have the conversation about your health care wishes with your loved ones, and especially someone who will serve as your health care proxy or agent.

Tonight’s program will walk you through how to complete an advance directive and health care proxy form, as well as tell you how to make it available to health care providers. You can download a sample form that is specific to your state before the program at Caring Connections.

The last program will air on April 25th and will discuss other legal documents related to end-of-life care, such as the POLST—Provider Orders for Life Sustaining Treatment—and the Do Not Resuscitate documents.

For the entire series, Healthstyles producers Barbara Glickstein, RN, MPH, and Diana Mason, RN, PhD, talk with Tina Janssen-Spinosa, JD, Staff Attorney for the New York Legal Assistance Group where she is Program Coordinator for Total Life Choices, an initiative to disseminate information about end of life planning and help people in their planning needs; and Vidette Todaro-Franceschi, RN, PhD, Professor of Nursing at Hunter College, City University of New York, and expert in end of life issues.

Remember that planning for the end of our lives is about planning for how we want to live.

Healthstyles is sponsored by the Center for Health, Media & Policy at Hunter College.

Do you have a designated health care