Connect with Healthcetera
Friday, April 19, 2024
HomeStandard Blog Whole Post (Page 70)

Story is an important part of healing. An entire sub-discipline in the health humanities referred to as narrative medicine has developed in the past thirty years in an attempt to understand, explore, and expand the use of story in health and healing. Sociologist Arthur Frank writes in his book Letting Stories Breathe: A Socio-narratology that our stories about our bodies and their troubles can actually care for us, by helping us formulate the courage to continue to desire from life, by helping to externalize our fears, and by helping us imagine our next viable selves, with and post illness.

 

Though both care givers and receivers alike can benefit from telling and hearing stories that help us heal, sometimes articulating our stories can be a challenge. Making and reading comics can be a terrific method for accessing our stories. (I’m defining ‘comics’ here as sequential art that conveys a narrative, often including text.) Based on a traditional panel framing, comics build one box at a time, helping us to focus and organize our thoughts and feelings. Comics combine word and image, and we know that different parts of our brains are in use as we do this, forging unique connections and pathways. Finally, comics can be fun – even when difficult topics are discussed.

 

Comics are an expressive medium, containing many genre. One of the genre to emerge quite prominently in the past ten years has been that of “Graphic Medicine.” This term was coined in 2011 by U.K. physician Ian Williams (author of The Bad Doctor) to refer to the interface between comics and the discourse of health. Three stellar examples of the variety and range of the genre are Peter Dunlop Shohl’s My Degeneration: A Journey Through Parkinson’s, Sarah Leavitt’s Tangles: A Story about Alzheimer’s My Mother and Me, and Brian Fies’s Mom’s Cancer. Fies has said of creating this book, “Comics were the right medium for the story I wanted to tell. They meld words and pictures to convey an idea with more economy and grace than either could alone.”

 

In Graphic Medicine, most often the works used in teaching are non-fiction memoir created by those living with illness and/or caregiving. Who better to represent the challenges illness can bring to lives, families, and communities? But those of us familiar with the history of medicine know that these voices are precisely the ones that have most often been marginalized. Physicians and other “experts” have traditionally defined and represented states of health, illness, and deviations from expected norms of the body. The underground history of comics is one that has created a space for bearing witness to stigmatized realities and amplifying the voice of the marginalized. Often these are our most vulnerable citizens, most in need of our health services, most at risk with proposed cuts to the Affordable Care Act. The new genre of comics known as Graphic Medicine can help by bearing witness to the stories of the impact of the ACA, those who will face the devastation its loss will bring to their lives. A series of four comics were posted last week on a website called The Nib, a website featuring political cartoons and non-fiction comics. The ACA comics were each individually titled, and the group was called “What Will Happen to Us? Four Cartoonists on A Life Without the Affordable Care Act.” The following example is by cartoonist Lucy Bellwood.Bellwood wrote on her blog about this comic, “I don’t talk about politics often. I like keeping my work accessible to a wide range of people. I’m also, if I’m honest, conflict-averse. But this so immediately and directly impacts my life and the lives of so many people that I love, that it seems like a good time to use the creative skills I’ve been cultivating to try and push for more awareness, more compassion, and more action.”

 

Those who work in the public health domain know that comics are great educational tools when we face a high density of information to communicate, there is a high importance to communicating the information, and the learner is in a high-stress situation. Next time you are on a flight, take a look at the informational card in the seat pocket before you. Odds are it’s a comic. They work.

 

Medical anthropologist Dana Walrath wrote in the introduction to her graphic memoir, Aliceheimer’s that, “Around the world, comic artists, caretakers, parents, and assorted onlookers are taking up their drawing tools, pens, papers, scissors, and computers to depict illness and ways of being human that have been stigmatized. This is Graphic Medicine.” If you are interested in Graphic Medicine and the potential uses of comics in health and health policy, visit www.graphicmedicine.org. If you are in the Seattle area, consider attending some of the public events of our annual international conference this coming week which will be held at the Seattle Public Library Main Branch Thursday June 15 through through Saturday June 18th. More information is available here. Let’s get drawing, reading, and sharing more comics about the impact of health policy that aims to benefit the already advantaged and leaves the most vulnerable lacking basic care. No experience necessary.

 

MK Czerwiec, RN, MA is a Senior Fellow of the George Washington University Center for Health Policy and Media Engagement. She is also Artist-in-Residence at the Northwestern Feinberg Medical School. Her graphic memoir, Taking Turns: Stories from HIV/AIDS Care Unit 371 was recently published by Penn State University Press. She is also a co-author of the Graphic Medicine Manifesto and with Dr. Ian Williams co-runs GraphicMedicine.org 

Story is an important part of healing.

The American Health Care Act, the proposed Republican health plan, would deal a major blow to Medicaid funding for the states. The Congressional Budget Office projects that if it passes, Medicaid cuts will total about $800 billion over the next decade, and leave 24 million more people uninsured—including many in the LGBT community.

Under the ACA, health plans cannot refuse coverage based on pre-existing conditions, such as HIV, substance abuse, or a transgender medical history. There are non-discrimination protections based on sex, which include gender identity and sex stereotypes, in any health program receiving federal funds (including Medicaid and in state marketplaces). This also includes sexual orientation.

The Center for American Progress found that among lower-income LGBT individuals (making between $15,000 and $22,000 annually), the uninsured rate dropped 18 points since the ACA’s Medicaid expansion.

Luna Hernandez is among those benefitting from enhanced Medicaid coverage. She is a transgender woman who receives care through Community Health Center, Inc. in Middletown, Conn. Thanks to the Center’s Project ECHO program, an education program for safety-net providers, Luna’s care team knows more about prevalent health issues among the transgender community and understands how to best interact with their patients.

Luna discusses her struggles and triumphs, her focus on staying healthy and the importance of the care CHC provides. I also speak with Wanda Montalvo, PhD, an advanced practice nurse at the Weitzman Institute the policy arm of CHC that oversees Project ECHO, about what the real-world ramifications of Medicaid funding cuts mean to vulnerable populations.


In celebration of Pride Month, this HealthCetera show produced by Liz Seegert was reposted. It previously aired in March 2017.

The American Health Care Act, the proposed

PhotoCredit: CR Myers

There is plenty not to like about the American Health Care Act (AHCA), a center piece of President Trump’s legislative agenda.  The prospect of someone without health care coverage being penalized when they seek health coverage (the opposite of the Affordable Care Act) is all wrong.  Millions of Americans covered under the Affordable Care Act (ACA) will once again find health care coverage unaffordable if the AHCA is passed and federal tax subsidies for coverage and funds for Medicaid expansion are eliminated or people can once again be denied coverage because of pre-existing conditions.  How is this making health care more affordable and better as President Trump promised?  How is this making America great?

By far the biggest negative is the threat of blowing-up Medicaid as we know it.  Medicaid is an entitlement program that provides health care to low-income Americans.  As an entitlement program, Medicaid guarantees certain benefits to groups of people who qualify.  If an eligible individual receives eligible health care services, they are covered.  The federal government’s funding is based on need and it is open-ended.  The AHCA ends Medicaid as an entitlement program and morphs it in to a block grant program.  The proposed Medicaid block grants fundamentally change how the federal government pays for the Medicaid program.  The implications of the proposed change are far-reaching and substantial.  With block grants, the level of federal funding is capped and details about administration of the program are largely deferred to the states (this is one mechanism for removing protections from being denied coverage if you have a pre-existing condition or eliminating what the ACA deems as “essential benefits”, including maternity and substance abuse care).  In general block grants are not responsive to increased needs such as an uptick in unemployment or erosion of benefits due to inflation.  The design of the Medicaid block grants in the AHCA is particularly ominous because the proposed funding is capped at levels significantly below current costs.  Federal funding is slated to decrease by 50% over 10 years culminating in an $880 billion loss of federal funds and a projected 14 million beneficiaries losing their coverage. 

States cannot bear this shifted burden. Currently the cost of Medicaid is split between the states and the federal government.  The federal government pays 50-83% of the cost of Medicaid depending on the state.  Medicaid represents the largest source of federal dollars that are transferred to states and major portion of state budget revenues.  States will be faced with reducing Medicaid benefits, eligibility, and/or payments for services if the AHCA becomes the law of the land. 

The challenges we face in Tennessee where I live will be exacerbated by enactment of Medicaid block grants.  Tennessee is already on the bleeding edge of harmful trends, in part because the state has not expanded Medicaid.  We are already losing ground.  This will only get worse if the AHCA is passed.  Tennessee is a relatively rural and poor state.  Too many Tennesseans are already burdened by worse health care and outcomes because of where they live and limited resources.  Approximately 36 percent of Tennesseans live in a rural county; 82.1 percent of Tennessee rural counties are classified as rural.  Seventeen of Tennessee counties, all rural, rank in the bottom 10 percent of counties across the country relative to unemployment, poverty rates, and per capita market income.  An additional 35 Tennessee counties rank in the bottom 25 percent nationally.   Eleven percent of all Tennesseans are currently uninsured, compared with six percent in neighboring state Kentucky which did expand Medicaid.  Rural residents across the country have higher rates of chronic diseases and higher rates of low birth weight infants, teen birth rates, overweight children, preventable hospital admissions, and incidence of Diabetes, along with lower life expectancies.  Tennessee has been hard hit by the opioid abuse epidemic.  It is estimated that one in six Tennesseans is abusing or misusing opioid drugs.  There has been a ten-fold increase in the incidence of babies born with Neonatal Abstinence Syndrome in Tennessee over the past decade.  Rural Tennessee residents are about twice as likely to overdose on prescription opioid drug as their urban counterparts.  The rate of use of prescribed opioid drugs among young adults in Tennessee (ages 18-25) is 30 percent higher than the national average.    There has been a 600 percent increase in hospital charges associated with opioid poisoning in Tennessee 1999-2011.  Passage of the AHCA, further loss of Medicaid funding, and an increase in the number of uninsured Tennesseans will result in further regression in the state.

Alarmingly Tennessee leads the country in rates of hospital closures.  Closure of a hospital, especially in a rural area can start a cascade of deleterious effects.  Tennessee had 9 rural hospital close since 2010, only Texas with 11 closures had more.  Seventy-seven percent of all rural hospital closures since 2010 when the ACA was enacted have occurred in states that have not expanded Medicaid.  The links between Medicaid expansion and hospital closures are in part an unintended consequence of the Supreme Court decision that wiped away mandatory Medicaid expansion in the ACA.  When the ACA was being drafted it was thought that payments to hospitals for uncompensated care accrued by uninsured individuals would no longer be needed because the number of uninsured individuals would steeply decline.   However, hospitals in non-expansion states are faced with the double whammy of reduced payments for uncompensated care and higher rates of uninsured individuals, an unsustainable combination.  Already burdened hospitals are too-frequently unable to withstand revenue deficits associated with uncompensated care.  Profit margins are just too thin.  Adding to the rash of hospital closures is the significant number of rural hospitals that have been identified as currently facing a high risk of closing.  In Tennessee, 32 hospitals are vulnerable to significant reductions in services, if not closure, because on average over a three-year period they have operated in the red.  The situation will only worsen if the AHCA becomes law.

It is incongruent to me that blocks of Americans, including a majority of Tennesseans who voted for President Trump based on the promise of better health care, will be the people who suffer most under the AHCA.  This is not great!  This is a dismal prospect and a potential burgeoning human tragedy.

 

Carole R. Myers, PhD, RN is an Associate Professor at the University of Tennessee with a joint appointment in the College of Nursing and the Department of Public Health.  She has recently been appointed as Senior Fellow for the George Washington University Center for Health Policy and Media Engagement.

[caption id="attachment_12498" align="aligncenter" width="794"] PhotoCredit: CR Myers[/caption] There