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At the American Society on Aging (ASA) conference in Washington DC, the mantra among many speakers was the same: technology’s role in caregiving is vital, and it’s growing.

Experts agree that to manage our ever-increasing senior population, they need to get wired – to access and learn how to use computers, email, social networking, and health information. To effectively do so, their tech literacy and comfort level must be raised. Most experts at the ASA conference agreed that accessibility and usability are two major barriers to overcome; without it, an entire population segment will be left out.

Flickr Creative Commons | matulio |

From looking up health information to Skyping with the grandchildren, to participating in social networks, going digital has many quality of life benefits. It also helps to improve cognitive function, memory, and reduce depression.

This is true not only for traditional computer use, but for other senior-focused technology as well. Entire industries are popping up to help seniors and caregivers better manage their health, improve communication, enhance literacy, and give adult children peace of mind about their loved ones’ health, safety, and quality of life.

I attended several presentations that highlighted innovative products such as watches to monitor vital signs, computers with touch screens, large type, and simple instructions, and sensors around the home to track movement, or lack of it.

These are good ideas that can certainly enhance well-being, and give adult children a sense of relief about their parents’ health. There’s only one problem with technology — it costs money. From equipment to setup to broadband access, technology doesn’t come cheaply. While families in middle to upper socioeconimic groups may be able to afford the setup and monthly fees; what wasn’t addressed, at least until I asked the question, was what is being done to help low income seniors and families?

The seniors that need these tools most – disadvantaged, homebound, low income, ethnic elders – seem to be outside of the target.

iPads may be a great way for seniors to get online, and FaceTime a wonderful tool to see the grandkids, but many seniors cite cost as one of the major barrier to technology adoption. For poor seniors that are home bound, the situation is even more precarious. Broadband fees are likely not part of their fixed-income budget. What is being done to help them access and adapt to technology — something that is almost an imperative in today’s wired world?

I also learned about several innovative pilot programs to help seniors learn computing skills, as well as efforts to address the needs of elderly that are aging in place. Many local elder service agencies have partnered with businesses, universities, and non-profits to set up and implement classes at senior centers and libraries. New products and services are available or in the pipeline to boost safety, security, and health management. I heard almost nothing about those elderly that are on the fringes.

We need to keep asking about them, and not stop until there are policies and programs in place to address their needs too.

At the American Society on Aging (ASA) conference in

Charmaine Ruddock is a Senior Fellow at CHMP.  She joined the Institute for Family Health formerly known as The Institute for Urban Family Health in 2000 to direct Bronx Health REACH, a coalition of 50 community and faith-based organizations, funded by the Centers for Disease Control’s REACH 2010 Initiative to address racial and ethnic health disparities.  

vlrg-kidney-grid-4x2 (1)A few months ago, Bronx Health REACH and its 3 fellow REACH projects  in New York  played  hosts to visitors from the UK who wanted to hear, see, feel and, where possible, even touch the work that we were doing in our respective communities to address the problem of racial and ethnic health disparities.  For those who may not know, there are 40 REACH communities across the country who are part of the Centers for Disease Control and Prevention’s cornerstone effort to have local communities design and implement solutions to the health disparities in their respective community.  Community can be a geographic location or a unique socio-cultural ethnic/racial grouping.  REACH which stands for Racial and Ethnic Approaches to Community Health focus is on eliminating underlying determinants through policy, system and environmental change.

The UK visitors are part of a collaborative effort by CDC, the UK Department of Health Communities for Health (C4H) program, the International Union for Health Promotion and Education; and Health Action Partnership International to create a REACH US/UK Learning Exchange project aimed at cultivating a learning exchange between select communities in the US and the UK.  The exchange is designed to provide participating communities with opportunities to share interventions and tools found to be effective in addressing social determinants and ensuring health equity in disparate groups.  The ambitious goal of this learning exchange is that the best practices and lessons learned from the work done in these communities will be disseminated to inform and improve global public health.  For the US visit, four English local authorities were twinned with cities in the US- Nottingham with New York (Brooklyn and the Bronx); Sandwell with  New York; Stoke with Alabama; and Coventry with Boston and New York.

The first thing that struck Bronx Health REACH about our group of visitors was that one of them was an elected official.  As we described our work to them and took them on tour of the sites of some of our Bronx based partners their responses were around four key points.  1) Our Bronx Health REACH team did not include elected officials (an issue they visited time and time again); 2) the depth of our community engagement and involvement; 3) the paucity of our healthcare system.  (They left with a burning commitment to thwart any effort back in the UK to adopt or borrow any aspect of our healthcare system); and, 4) the level of poverty they saw led them to rethink what they pointed out was their very distorted view of the American safety net system.  Following are some of the points they made in their report documenting their reflections of what they saw and understood of our work within the larger context of addressing the determinants of health disparities.

  • Individual projects have not been set up to overcome huge barriers.  Challenges such as structural poverty, denial of access to adequate health care for specific groups, lack of public sector infrastructure etc. are too large to be overcome at a local level.
  • The challenges in implementing health program based on a social determinants approach include scaling up, managing policy changes, developing cross-sector processes and ensuring sustainability. There is a need for partnership and collaboration across sectors so that a common vision and objectives can be identified and implemented.
  • An asset based approach appears to be the way forward at a community level.  The projects had a good understanding of the importance of using assets that already existed in their communities and there were excellent examples of how this had been achieved.
  • There was much evidence that small amounts of funding at a local level enable innovation. However, if success at a project level is to be maintained or expanded there is a need for clear, high-level strategic leadership, accompanied by long-term funding focused on reducing health inequities?
  • It is not usually the remit of community-based projects to strive for health to be embedded in all policies at a higher strategic level.  However, it is clear that the projects tried to influence policy makers to consider health in its widest sense.

It was a unique and welcome experience to see our work through their eyes. So much of their interpretation of what they saw is what REACH communities have understood and have been advocating for as a new framework for sustained response to health inequities.  It is also what informs the work of the National REACH Coalition and its offspring, the National Health Equity Coalition at the federal level.

A reciprocal trip is being planned for the REACH grantees to visit their UK counterparts in summer 2012. It will be interesting to look at their communities, their safety net system, and efforts to address the determinants of health through our particular lens of health care access, and socio/economic/environmental determinants of health.

I will keep you posted.

Charmaine Ruddock

Charmaine Ruddock is a Senior Fellow at

This post was written by Jennifer De Jesus a student in the Macaulay Honors College at Hunter and an avid movie watcher. She is also an employee of the Health Professions Education Center, which has one of the largest collection of health films in the New York City area.

“Mar Adentro” — “the Sea Inside”

the_sea_inside

 Based on a true story, “Mar Adentro” focuses on the life of Ramón Sampedro, a Spanish quadriplegic who campaigns for 29 years for euthanasia and the right to end his life.

At the age of 25, Ramón Sampedro sustained a complete spinal cord injury because of a diving accident near his fishing village in Galicia, Spain. Immediately after the accident, Ramón knew he wanted to commit suicide, a task now physically impossible. His unwavering desire for death, for almost three decades, was Ramón’s main argument for euthanasia. “The Sea Inside” captures Ramón’s legal appeals to the lower and higher courts in Spain, as well as his appeals to the European Commission on Human Rights in Strasbourg.

Although an enormous amount of sympathy is garnered by Ramón, the film provides many moments of heated arguments, fleshing out the many conflicts and nuances within the debates surrounding assisted suicides.

One of the most heart-wrenching scenes occurs as Julia, Ramón’s lawyer, friend, and love interest, falls down steps due to a heart attack, and Ramón (who is facing the opposite way) is only able to yell her name. The panic and fear, mixed in with anger over his inability to help or even see her, is multiplied with every shout, until the scene fades into the darkness.

Another equally powerful scene, filled with quick, witty banter between Ramon and a quadriplegic priest, continued to expand on the conversation on euthanasia. Unable to actually speak face-to-face due to an issue with the stairs, the men resort to speaking through a messenger, one of the priest’s helpers. The running up-and-down the stairs adds humor to such a serious topic, without detracting the valid and strong points made on each side.

“Mar Adentro” does a great job contributing to the conversation on death and dying, In Spain, is has become part of the  public health narrative  and legislation supporting palliative care and death with dignity.

“Living is a right, not an obligation,” Ramón states moments at the dramatic end of the movie, yearning to appeal to the notion of free will within us all.

This film (as well as the BBC documentary “Right to Die”) is an important resource for the conversation about death and dying.  Viewing it, alone or with someone, provides moments of reflection and food for thought that can contribute to a  balanced discussion on euthanasia.

This post was written by Jennifer De