Connect with Healthcetera
Wednesday, November 13, 2024
HomeStandard Blog Whole Post (Page 289)

A "refusal of treatment" form from o...

This weekend, my husband and I finally sat down to review advance health directives. It’s something we should have done years ago, but kept putting off. No one likes to confront his or her own mortality. Or what would happen if….

Discussing living wills and health proxies with your spouse and family may be one of the most vital conversations you will ever have. Yet, it seems my husband and I are not the only ones putting off this task – a 2011 poll conducted by the Associated Press- LifeGoesStrong showed that 64 percent of baby boomers (b. 1946-1964) and 70 percent of all US adults do not have a living will, health proxy or other advance directive. A search of current media stories on this topic showed a similar lack of emphasis.

A health proxy is a necessity in today’s complex health environment. It gives a person of your choosing (your agent) the authority to make specific care decisions on your behalf, if you are unable to do so. This may encompass anything from surgery, to medication, to a do-not-resuscitate (DNR) order. Medical practitioners are obligated to follow those instructions.

A living will spells out your general wishes regarding your health care. For example, you might state something like “I do not wish to be kept alive by artificial means, such as a feeding tube,” or “I only wish to have medication to ease pain and suffering.” This points physicians and family in the right direction about care, and helps avoid conflicts about your treatment, if you are unable to express your own desires.

The state of New York provides free downloadable health proxies and living wills. As an aside, it was good to note that health literacy was factored into the writing – medical terms are explained in plain language – and the what, how, and why of these documents are laid out step by step.

If you live outside of New York, check with the health department in your state for current information and requirements – this is especially important if you reside in more than one state during the year. A lawyer is not necessary, although it may be wise to have a copy of your directive and proxy on file with him or her. The agent, and a backup, should also have copies of your proxy and living will.

This was one of the most difficult – yet totally necessary — conversations my husband and I have ever had. The only one that may be harder is having it with our family, especially our 20-year old. Yet should the time come when these directives are needed, I know that our healthcare decisions will be made according to our wishes, not someone else’s.

Living wills and health proxies are vital

Source: www.psychcentral.com

Source: www.psychcentral.com

Sexually transmitted disease (STDs) are on the rise among adolescents nationwide. The reasons for this increase and what can be done to stem it are the focus of this week’s Healthstyles program that will air on WXMR-FM (www.wxmrfm.com; 100.7 FM) at 11:00 AM on January 30, 2012. Producer and Moderator Diana Mason, PhD, RN, interviews Drs. Carol Roye, EdD, RN, PNP, assistant dean for research at Hunter-Bellevue School of Nursing and a pediatric nurse practitioner who cares for adolescent girls, and Kellie Volcy, DNP, APN-C, instructor of nursing at the University of Medicine and Dentistry of New Jersey and a women’s health nurse practitioner. They discuss why it’s a concern and what can be done to reverse the trend.

[caption id="attachment_10219" align="alignleft" width="200"] Source: www.psychcentral.com[/caption] Sexually transmitted

The two mythologies about disabled people break down to one: we can’t do anything, or two: we can do everything. But the truth is, we’re just human. –Mark O’Brien

surrogate1I arrived at Sundance with a list of documentaries about traditional health issues. I quickly realized that so many of the films at the festival – documentaries and narratives – deal with “health” in its broadest sense. They may not be about a disease or a health policy issue, but they explore what it means to be fully human and fulfill dreams or encourage us to examine the many parts of ourselves. These too are important aspects of health. On the advice of Caroline Libresco, a programmer at the Sundance Film Festival, I expanded my documentary list to include narrative features and got a ticket for THE SURROGATE, a film by Ben Lewin starring Helen Hunt, John Hawkes and William H. Macy. THE SURROGATE is based on the true story of Mark O’Brien (played by John Hawkes) a poet and journalist who was confined to an iron lung and largely paralyzed after suffering polio as a child. At 38, he decides to lose his virginity with the help of a sex surrogate (Helen Hunt). It is a sweet and often funny portrayal of a man who, because of his condition and his upbringing, thought for many years he should not, or could not, have sex. With the help of a therapist, some supportive friends and most importantly, Helen Hunt’s sex surrogate character, he learns to fully inhabit his body and connect to others both physically and emotionally.

John Hawkes is incredible in his portrayal of Mark O’Brien. Hunt and Macy also give great performances. The movie has a lovely vibe, even if the pacing is a bit slow. It’s a rare chance (for many of us) to spend time with someone with such limited physical ability. Mark must lie horizontally at all times (he can’t sit up) – whether he’s home inside his iron lung or outside being pushed on a gurney.

surrogate-2The real Mark O’Brien wrote about losing his virginity in an article called “On Seeing a Sex Surrogate” published in 1990. He passed away in 1999. An Academy-Award winning documentary about Mark, BREATHING LESSONS, was made by Jessica Yu. You can watch it in full (it’s 35 mins) on the Snag Films website. A video interview with SURROGATE’s director, Ben Lewin can be seen here. You’ll be able to see the film in theaters soon – it was picked up yesterday by Fox Searchlight Pictures, great news for the filmmakers and for audiences.

Senior Fellow Hannah Rosenzweig, MPH is in snowy Park City, Utah reporting on films at Sundance 2012 for the Center for Health, Media & Policy.

The two mythologies about disabled people break