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It’s no secret that America’s current model for delivering and paying for healthcare, and in particular, long-term services and supports, is broken.   Story upon story – including this from TIME, “Dignity, Death and America’s Crisis in Elder Care,” or this from the Wall Street Journal, “Millions Bought Insurance to Cover Retirement Health Costs. Now They Face an Awful Choice,” show that we need to rethink how care is delivered and paid for. 

credit: boris bartels, cc license

The costs of long term care can quickly bankrupt a family, who may struggle to provide even minimal paid help with basic activities of daily living for their loved ones, like bathing, dressing, or toileting. The median cost of home health care is $4,000 per month, according to Genworth Financial. The average cost of assisted living runs approximately $3,750 per month for just the basics; and a semi-private room in a typical nursing home costs upwards of $7,100 a month. Only 11 percent of Americans have long-term care insurance — it’s costly and many mistakenly assume Medicare will cover most of their future health care needs. 

However, with few exceptions, Medicare does not pay for help with daily living assistance delivered in the home unless it includes a skilled nursing component. Nor does it cover alternative living options like assisted living or long term nursing homes care. Medicaid, the safety-net program for those with very low income, will cover certain community based programs and pays for long term institutional care, but only after a person’s assets are virtually depleted. And, while the Centers for Medicare and Medicaid Services (CMS) does oversee several innovative home and community programs that allow chronically ill older adults to avoid or delay institutional care, they are not widespread and therefore, unavailable to everyone who may need them.

The wave of Medicare-eligible Baby Boomers is putting more pressure on an already-strapped system to deliver quality, cost-effective long term care. People are living longer — the over 85 group is now the fastest growing cohort in the U.S.,  and they’re living with more debilitating chronic conditions. 

It’s obvious that we need a different policy approach to financing long term services and supports. A recent report from LeadingAge, a non-profit representing the field of aging services, lays out the rationale for and potential framework of such a plan. In A New Vision for Long-Term Services and Supports, author Aaron Tripp, Leading Age’s director of long term care policy and analytics argues for universal long term care coverage for everyone, that’s both flexible and dignity-driven. 

A system that rewards health and wellness will delay the need for LTSS,  he said. A well financed universal plan with managed cash benefits would allow older adults in need of care to obtain a range of services and programs that meet their specific needs, when they need it, and allow them to live at home or in the community longer. It could save the health system money by delaying or avoiding additional hospitalizations or admission to nursing homes.

Given the current political climate, it’s unclear how anything called “universal coverage” will go over in Congress. But Tripp told me that behind the scenes, there’s actually some bipartisan support for a long term care benefit that covers everyone. Financing could come through payroll deductions, much like Medicare and Social Security are currently paid for. 

One can only hope national and local legislators act soon, before already financially and emotionally strapped families hit their breaking points.  

You can listen to the entire interview, which aired on HealthCetera, here.

It’s no secret that America’s current model

On Monday, March 12 during the 62nd session of the United Nations Commission on the Status of Women, Sigma presented a parallel program, Women as Subjects, Consumers, and Thought Leaders of Media, to an overflowing room of international attendees. Representatives of Member States, UN entities, and ECOSOC-accredited non-governmental organizations (NGOs) from all regions of the world attend the sessions. 

The focus on the Sigma session reflected the CSW62  theme: Challenges and opportunities in achieving gender equality and the empowerment of rural women and girls; and that the participation in and access of women to the media, and information and communications technologies and their impact on and use as an instrument for the advancement and empowerment of women

Sigma panelists included: Julie Adams, Sigma Director of Marketing and Communications, Diana Mason, Senior Policy Service Professor and Co-Director of a new Center for Health Policy and Media Engagement, George Washington University School of Nursing, Aden Hamza, Sigma United Nations Youth Representative, Marnie Colborne, Sigma United Nations Youth Representative and Cynthia Vlasich, Sigma Director of Global Initiatives. 

Bios of the panelists can be found here.

Dr. Mason spoke about George Washington University’s Center for Health Policy and Media Engagement’s current research study, “Nurses and the Media: A Qualitative Study of Journalists’ Use of Nurses as Sources in Health News Stories.” This 2018 study is a revision of the 1998 study,  The Woodhull Study on Nursing and the Media, originally commissioned by Sigma.  The quantitative research of the 2018 study is being conducted with the Berkeley Media Studies Group.

She shared the Woodhull Study’s original findings and stated why 20 years later another media analysis is critical to measure nurse’s visibility in the media. She addressed issues that prevents nurses from being media-savvy role models, and what actions can be taken to engage journalists to increase nurse’s representation in the media and become sources for their health care reporting in traditional digital and social media.

The high-level findings from the “Nurses and the Media: A Qualitative Study of Journalists’ Use of Nurses as Sources in Health News Stories” will be presented at a press conference at the National Press Club in Washington, DC, on May 8th. This event will be live streamed and archived. 

 

 

On Monday, March 12 during the 62nd

When a child is sick in the hospital, finding ways to help families participate in the healing process can be transforming. Introducing integrative therapies to children and families in ways that are accessible and fun requires taking into account different learning styles, the age of the child, degrees of illness, and time constraints.  These teaching resources can help children, their families and caregivers cope with the physical, mental, and emotional side effects of serious and prolonged illness.

HealthCetera producer Eve Adler interviews integrative nurse Bess Heliker, RNC, MN, CNS NICU Clinical Nurse Specialist and Alexandra Cree, a mother of a child who had leukemia. She learned some of these therapies to support the health and healing of her child.

You can listen to this HealthCetera segment here:

Alexandra Cree & Bess Heliker, RNC, MN, CNS

When a child is sick in the